Sunday, June 22, 2014

Sunday, June 22, 2014

Sorry I haven't updated since Tuesday, it has been a really busy week and we don't get internet well at the camper.

Tuesday, Marty was released from the hospital.  His fever was gone and they have him on mega doses of antibiotics.  When we left, his platelet count was at 22,000, so he didn't have to have a transfusion.

Wednesday we went in for an outpatient labs, lab review, and transfusion.  Marty's levels were at:

White blood cell count, 0.1 ( Normal is between 4.0 - 11.0), this indicates that he has very little immune system, which is expected because of the chemo.
Red blood cell count, 3.56 ( normal is 4.5 - 6.00), it is a little low but not low enough to require a blood transfusion.
Platelet count, 11,000 (normal is 140,000 -440,000), still too low and he required a platelet transfusion of 1 unit.

While there, we found out that the unit of platelets he was given on 06/15/14 was contaminated with the Staphylococcus epidermidis bacteria and they had made an appointment to see the Infectious Disease department.  Because he was on mega doses of antibiotics and hadn't had any issues, they really didn't think he was going to have any problems from it, but wanted him to see Infectious Disease as a precaution.

Staphylococcus epidermidis is one of the normal bacteria found in everyone's skin.  Because platelets die very quickly, they can't test them before they are given, they won't survive long enough to get test results back.  Contamination happens occasionally, so this wasn't too unusual.

We spent all day at MD Anderson on Wednesday, it was nearly 8 pm before we got home.

Thursday, my parents brought the boys go see us.  We had a great time visiting with them.  We have missed them so much!  Poor Riley has been extremely homesick, and having a hard time being away from us.  To help keep his mind of it, we bought him an Xbox game he's been wanting g for a while, Skylanders Giants.  You can get these little figures that can do different things in the game, and we plan on sending him extra figures to him throughout our stay here to surprise him and hopefully keep him occupied so he won't get so homesick.  If you think about it, please send up some prayers for Riley

They stayed until around 3 pm and then went home.  Then I had to take Marty back to MD Anderson so they could get a blood culture to see if the Staphylococcus epidermidis bacteria showed up in his blood.  Then we discovered a Freebird's close to the RV park, and Marty was in heaven.  He loves eating there :-)

Friday, we had another outpatient appointment for labs, to see the doctor, to see Infectious Disease, and for a platelet transfusion.  His counts were at:

White blood cell count, 0.1 ( Normal is between 4.0 - 11.0), this indicates that he has very little immune system, which is expected because of the chemo.
Red blood cell count, 3.25 ( normal is 4.5 - 6.00), it is a little low but not low enough to require a blood transfusion.
Platelet count, 10,000 (normal is 140,000 -440,000), still too low and he required a platelet transfusion of 1 unit.

Oh, one exciting thing happened while he was getting lab work!  We were able to get photographic evidence that ELVIS is alive and well at MD Anderson, scroll down to see it...lol!

The doctor said he was doing really well and that he probably won't lose his hair this round of chemo.  There wasn't really anything else, she was pleased with his progress.

Then we went to Infectious Disease and the doctor there said that the blood culture was clear so either he got such a low dose of the bacteria that it didn't show up, or that all the antibiotics he was in killed it out.  Either way, he was all clear and doing well.

Then we went to get 1 unit of platelets transfused.  It was nearly 7 pm before we were done.  One of our ham radio friends, Lynn, was just admitted to MD Anderson, so we stopped by and visited him for a little bit.  Then we went home, ate, and went to bed.  Another long day...

The nurses tell us that the MD in MD Anderson stands for "Most of the Day", which is proving to be true...lol!

Saturday, we ran a few errands and then spent the day at home.

Sunday, we are doing laundry and I will be cleaning the camper. 

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